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RRP ISA Survey Results
    About Us

    (Important Disclaimer)


    About Us

    Mission and Goals

    Our organization name is the International RRP ISA Center. It's long, but we abbreviate it RRP ISA. RRP is an acronym for Recurrent Respiratory Papillomatosis. The ISA in our organizational name stands for Information, Support and Advocacy.

    RRP ISA is a non-profit, tax exempt 501(c)(3) organization that has served the RRP community since 1998. Its mission is to better the lives of RRP patients and families by providing Information, Support and Advocacy (ISA) to the RRP community, physicians and researchers. This includes maintaining a very active website and message board; providing patient counseling and case-management; organizing RRP-related conferences; and funding research into the causes and treatment of RRP.

    We also educate the public about RRP. This is especially appropriate now that Merck has released Gardasil, an HPV vaccine that helps prevent people from catching the virus that causes RRP (mostly HPV6 and 11 + occasional 16). We are endeavoring to develop our educational resources and expand our ability to make distributions to RRP-related organizations and patients/ families who cannot afford medically necessary treatment.