RRP ISA Survey Results

    (Important Disclaimer)


    Kids and RRP (JOORP)

    You should be mindful that until your child's recurrence pattern is well-known, it is wise to monitor the situation on a more frequent than not basis. You can certainly tell when their voice is more hoarse or if stridor appears. (If the airway begins to be blocked, you will probably hear stridor.) In any event, we suggest checking in with your physician on a regular basis since in some children, RRP can flare up quickly and cause serious hoarseness or breathing difficulties in as short a time as a week or two.

    The general rule of thumb many experienced physicians follow is not to do surgery unless the voice or airway is compromised. If there is hoarseness due to papilloma, and it is compromising your child's ability to speak normally, your physician will probably want to remove the papilloma.

    If the hoarseness is caused because of scarring from previous surgeries, you might want to find a doctor whose surgical technique is more refined (scarring to the point where it causes functional difficulties is usually unnecessary regardless of what you have been told). Surgery should not cause damage to the larynx. If it does, something's wrong. That is why many patients are so selective about their physicians.

    Both Bettie Steinberg, PhD and Ian Frazer, MD are experts on HPV/RRP. They have indicated in private discussion with the director of RRP ISA that Gardasil might very well act prophylactically to prevent further spread of RRP/HPV to the lungs in patients already diagnosed with laryngeal or tracheal RRP.

    The following items may be of interest to kids and those with kids:

    1. Kid-Specific Resources
    2. Risk Factors for JOORP
    3. Treatment-Related Issues